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Spouses or other loved ones of people who have cancer face their own set of demands. Yet these challenges are often ignored or disregarded in the wake of the multiple stressors faced by patients themselves. Spouses face a unique set of concerns. This can include the burden of becoming the sole breadwinner for the family, balancing their own work demands with the patient’s increased needs, dealing with the concerns of children, and coming to terms with the possibility their spouse might die and they will be alone. Often, cancer treatment can lead patients to be less interested in sex, which can cause additional stress in the relationship. A common problem is spouses “putting on a brave face” despite these stressors. They might assume that they need to appear strong and in control for their loved one who is sick. Or, they might think that their feelings or concerns are unimportant in comparison to the person who has cancer. This can lead to impaired communication in the couple, and increasing resentment in the spouse. The truth is that sadness, fear, and anger are a normal part of the cancer experience - for both patients and spouses. It is not necessary for spouses to ‘stay positive’ and in fact, many with cancer find it invalidating or tone-deaf when their partners respond in this way. The key to successfully navigating cancer is to communicate openly within the couple. This involves each person allowing and making room for the other’s thoughts and feelings. And recognizing that the suffering of the person with cancer does not invalidate the suffering of the spouse. American Cancer Society Stanford Medicine
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You have cancer, and you are worried about losing your hair. Rest assured, you are not alone. A recent scientific review found that hair loss was consistently rated as one of the most distressing aspects of cancer treatment. Health-care providers, who are focused on treating the cancer itself, often underestimate the psychological impacts. Patients can be left feeling that they are being silly for worrying about something as trivial as their appearance. There is nothing silly or strange about dreading hair loss. Our hair is a key aspect of our identity and the way we communicate that self-concept to the world. A glance at someone’s hairstyle helps us understand whether that person is classical or edgy, carefree or meticulous, young or old, healthy or sick. We tend to associate a full head of hair with youth, health, and vibrancy. It’s perhaps not surprising then that people who lose their hair – for any reason – are often concerned about their attractiveness. People who lose their hair due to chemotherapy share those concerns and in addition, feel freakish or the center of attention if appearing in public without some sort of coverage. “I don’t want people to pity me,” is another comment I hear frequently about why people elect to wear hair pieces, wigs, or scarves. Even just looking in the mirror is a continual reminder of the cancer. Hair loss due to chemotherapy isn’t limited to the scalp. Depending on the specific medications used, chemotherapy also can result in losing your eyebrows, eyelashes, and pubic hair. Hair loss in these body areas can be more devastating to people than simply losing the scalp hair. So what can you do? The good news is that you get to decide the response that suits your personality and priorities. In my career, I have seen a wide range of responses: from labor-intensive cold caps (or scalp cooling) to minimize hair loss, head shaving in advance of/or at first signs of hair falling out, use of wigs, hats and/or scarves, and my personal favorite: rocking baldness with bad-ass earrings and a moto jacket. (Don’t forget sunscreen if you opt to go au naturel.) Eyebrows and eyelashes can be approximated with pencils and falsies – or not. It’s really up to you. The point is that you can – and should - continue to claim and express your identity even as you lose your hair. In time, your hair will start growing again. It might not look the same as before. For most people, this is temporary, and their usual color and texture return in time. This period is another opportunity to express yourself or maybe try something new. Some people decide that they like wearing their hair short, and they continue with this style even though they had long hair in the past. Others experiment with fun colors like pink, blue, or green while their hair is in the early grow-out stages. Once again, there is no right or wrong – it’s your body, and it’s your choice. American Cancer Society Mayo Clinic
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As we approach the mid-point of 2020, I wonder what else might happen in this already calamitous year. Who would have thought as we rang in 2020 that it would bring a global pandemic, the end of our day-to-day lives as we knew them, massive unemployment, countless lives lost and many more disabled from COVID-19 complications, American culture wars and political dysfunction, unthinkable brutality and abuse of power captured for the world to see, and now protests around the world against systemic racism and police violence. I am exhausted just thinking about all of it. It’s no wonder that stress and anxiety are at record levels. But it’s not just that … many people are also feeling depressed and hopeless. No doubt you have already been flooded with self-help tips for coping with the stress of everything. In my view, taking care of your body is fundamental to everything else you might try. That means regular physical activity, healthy food choices, and sufficient sleep (at least 7-8 hours for most people). My next major piece of advice is to keep a regular schedule. Set regular bedtimes and get out of bed at around the same time every day. If you are working from home, create designated workspaces and dress for the workday as though you were still going into the office. Beyond this, it is helpful to find ways to incorporate relaxation, social connection, and moments of fun and lightness into your routine. And although the world might be turned upside down, flowers are still blooming, baby birds are hatching and fledging, and sunrises and sunsets are as beautiful as ever. Seek opportunities to ground yourself into the rhythms of nature that remain unchanged.
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Increasingly, college-educated elite are valuing their work as the centerpiece of their identities and life purpose. Beyond being seen as a source of income, Americans are turning to their work as the main source of what makes their lived meaningful. They worship at the altars of their desks, seeking transcendence through their career accomplishments.
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It’s February. How are you doing with the New Year’s resolutions you made this year? Despite our good intentions, most of us (around 8 in 10) will have already abandoned whatever we resolved to do differently in the New Year. Why do we fail? In a nutshell, it's because we don't have a real plan. Most of us do not define what we really want to accomplish in clear, measurable terms. On top of this, most of us don't know how we will get there. We haven't thought about how we will deal with challenges or barriers to meeting our goals, or on the other hand, how we can reorganize things in our lives to make it easier to keep our resolutions. Fear not: help is available. One of the best sources for clear, concise guidance is a book written by my colleagues, Sheri Pruitt and Josh Klapow. Living SMART: Five Essential Skills to Change Your Health Habits Forever is focused on health behavior like losing weight, or stopping smoking. But its core recommendations can be applied to any type of resolution that involves changing what you do on a daily basis. Living SMART uses the acronym S-M-A-R-T to describe the skills needed for success. I have taken the liberty of summarizing each of the skills below. Setting a goal involves translating a general health goal to a target behavior. For example, “I need to relax” could be translated into “I will practice relaxation exercises for 10 minutes, three times per day, and five days per week.” One key aspect of goal setting, according to this approach, is to start with a target that is small and achievable, and then build slowly on success. Monitoring progress is perhaps the most overlooked component of success. Self-monitoring, using a simple chart, can be used to track virtually anything you do, including exercising, eating, spending money, etc. Research has shown that self-monitoring has an impact, in and of itself, on the target action. Watching progress visually on a chart becomes a type of reward in itself. Arranging the environment for success means modifying the home or work environment to encourage new habits that you want to cultivate, and/or to discourage old habits that you want to decrease or eliminate altogether. For example, if you want to stop drinking sodas, remove these drinks from the home refrigerator and storage pantries. Or alternatively, if you want to walk more frequently, place walking shoes at the front door as a reminder. The possibilities for arranging the environment are almost endless and require simply thinking about ways in which your desired actions can be prompted while undesired actions can be made more difficult. Recruiting a support team involves seeking the positive influence of family, friends, and others to help meet your goals. Identify buddies or peers, meaning people who who want to achieve similar goals, to provide camaraderie along the way. Supporters, meaning people who are not necessarily making changes themselves but who agree to support your efforts, also can be helpful. Treating oneself involves setting rewards for meeting your desired goals. Rewards should be decided in advance, and should occur frequently at the beginning. They don’t need to be large or expensive - bubble baths or watching a favorite show are examples of small treats that can be used. Over time, feelings of accomplishment and satisfaction often become rewarding in themselves. This is a quick summary only. Sheri and Josh's book goes into much greater detail about each of these skills and how to apply them. I encourage you to read it in order to learn more about these concepts. The research is clear: if you want to keep your resolution, you need a real plan. Your plan must define your target behavior in clear terms, include how you will change your surroundings to encourage your resolution, involve the support of others, allow you to self-monitor your progress, and reward your actions along the way.
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Pain is an inevitable part of the human condition. And for many of us, pain becomes chronic at various points in our lives. When pain is chronic, we often create an inner dialogue about what we are experiencing. “I am so out of shape, it’s no wonder I threw out my back.” “Maybe something is really wrong that the doctors have missed.” “I don’t know how much more of this pain I can take.” Emotions also are often overlaid onto pain. Sadness, fear, and my specialty, anger, are common responses. So pain becomes more than pain. It turns into the sensory experience plus the running inner dialogue plus the negative emotions. No wonder we find it so exhausting! What is the solution? In the words of Jon Kabat-Zinn, founder of the Mindfulness Based Stress Reduction program, you need to “put out the welcome mat” for your pain. Not because you’re masochistic, but because your pain is already there. You might not like your pain, but learning to accept its presence (because it’s already there) is the first step in disentangling your sensory experience from all the negative thoughts and emotions. Try this. The next time you have pain, find a quiet place to sit or lie for a few minutes. Take a few breaths to center yourself and quiet your mind. Next, turn your attention to the area of your body where you are experiencing the pain. As objectively as possible, observe the pain you are experiencing. First, try to identify its precise location. Where exactly in your body do you feel the pain? Zoom your attention to its center. Next, try to identify its borders. Where does the boundary lie between pain and no pain? Does this boundary change with time? After you have located your pain, turn your attention to its qualities. Is it dull or sharp? Steady or throbbing? Do its qualities change over time? Go inside your pain. Observe it moment by moment, staying non-judgmental all the while. Think of yourself as a scientist or an explorer of the inner world of your pain. Stay with your pain for a few minutes more, observing its location and qualities as they unfold over time. You will probably find that your pain is not static, but rather dynamic, transforming in character and intensity even within the few minutes of this exercise. According to Jon Kabat-Zinn, if you move into pure awareness in the midst of pain, even for the tiniest moment, your relationship with your pain is going to shift right in that very moment. By seeing the pain for what it really is, stripped of the negative thoughts and feelings that usually accompany it, it becomes immediately more manageable, more livable. The sensory experience of pain might still be present, but the suffering is diminished. Directing conscious attention towards softening and releasing the area of pain (even by the tiniest fraction) in these moments often brings additional benefits. Some people resist trying this exercise. The notion of paying attention to the very thing that causes them so much suffering seems overwhelming at first. This response is understandable: humans have a natural tendency to push away from their pain. This exercise, in contrast, calls for the exact opposite response. It invites people to get close to your pain, indeed, to inhabit their pain and recognize it for its true nature in that moment. What does the evidence say? A recent study found that participants in a single session of a mindfulness-based body scan reported less pain related distress and less interference of pain on social relations, compared with matched controls who did not participate. A different systematic review of the effects of Mindfulness Based Stress Reduction interventions on chronic low back pain revealed similar and interesting results. Pain intensity did not decrease consistently as a result of the interventions, but pain acceptance did. My reading of this evidence is that exercises similar to that described above do not necessarily reduce pain, but they do help people suffer less. In the words of the Dalai Lama, "Pain is inevitable, suffering is optional."
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Amidst the rush of this holiday season, let's all pause for a moment, reflect on the many positive aspects of our lives, and give thanks for our special Best Friend Forever (BFF): pain. Pain is a wonderful adaptation that helps human survival. It tells us - in an intense and immediate way - that we are doing something that is harmful and that we had better STOP right now if we know what's good for us. Think of the feeling of touching a hot stove, or over stretching our muscles. ain also tells us when something is wrong inside our bodies, like appendicitis. People who cannot feel pain because of genetic disorders or neurological damage lead dangerous lives. They have been reported to suffer from bitten tongues, scaldings, and serious infections without knowing it. The main problem for most of us is when our pain becomes chronic. At that point, we have received the message loudly and clearly that something is wrong: we don't need additional pain to understand the warning. We might have sought medical advice and undergone physical exams, MRIs, and other tests to pinpoint the source. And, our doctors might have told us that while they understand what is causing our pain, there is nothing that they can do to treat the underlying problem. Sound familiar? You are not alone. According to the American Academy of Pain Medicine, chronic pain affects more Americans than diabetes, heart disease, and cancer combined. More than 1.5 billion suffer from chronic pain worldwide. Many will live with varying levels of daily pain for the rest of their lives. While it isn't always possible to treat the underlying problems, there are many proven methods for managing pain itself. Upcoming blog posts will examine some promising strategies. In the meantime, the next time you have pain, stop and ask yourself what else you are thinking and feeling, in addition to the pain itself. Perhaps you will detect frustration, sadness, or vulnerability. Anger is my 'go to' emotion when I experience pain. I get mad that I have the problem in the first place, that I cannot do the physical things I want to do, and that there is next to nothing I can do to change the situation. Of course, my anger does nothing to help the situation. In fact, it just makes the pain worse. Paying attention to your internal chatter about your pain is an important first step towards managing it better. Eventually, you can learn how to separate pain sensations from all the thoughts and other feelings that tend to go along with it. This technique, too, will be examined in greater detail in future blog posts.